Center for Alaska Native Health Research
Institute of Arctic Biology
205 Arctic Health Research Building

 

Phone: 907-474-5528

1-888-470-5576 toll-free within Alaska 

Fax: 907-474-5700

uaf-iab-canhr@alaska.edu

Ethics of Dissemination

Photo by Bert Boyer

Ethics of Dissemination: Communicating with Participants about Genetic Research

In collaboration with investigators at the Center for Genomics and Healthcare Equality at the University of Washington, this interdisciplinary partnership will develop a culturally meaningful communications strategy for different types of genetic results.

Yup’ik community members, health care providers, and Yup’ik scientific co-researchers collaboratively work with CANHR and UW scientists to develop dissemination strategies for genetic research results and progress. A guide will be developed to assist CANHR scientists, other researchers, and community partners in determining an appropriate plan for communicating genetic research results, progress, and/or educational materials.

Bert Boyer, Ph.D., Principal Investigator

Wylie Burke, M.D., Ph.D., Principal Investigator, University of Washington

NIH/National Human Genome Research Institute, R01HG005221